Gorlin Syndrome Group

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  • Answers to health questions from other patients
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  • Tools to help you make choices that are right for you

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Questions

  1. MamaJenny
    Has anyone experienced an increase in cyst formation with Erivedge? By MamaJenny |  14 May 2013 |  No answers
  2. sharon65
    does gorlin scar the heart By sharon65 |  26 Apr 2013 |  No answers
  3. ashley12
    Does anyone have any experience with the Erivedge pill by Genitech? By ashley12 |  4 Apr 2013 |  3 answers
  4. bigbry
    Is there any connection between a condition called MYELOPATHY and GORLIN. Apart from spinal, and that they are both heritable?? Thank you By bigbry |  25 Mar 2013 |  1 answer
  5. bevjayne25
    Has anyone used the imiquimod cream? By bevjayne25 |  7 Mar 2013 |  4 answers
  6. Wendybob
    Inconclusive genetic testing? By Wendybob |  5 Mar 2013 |  1 answer
  7. boys0812rfun
    Jaw Cysts How often are you seeing these cysts return? My 13 yr old has had 2 removed. By boys0812rfun |  28 Jan 2013 |  4 answers
  8. Janeyj
    How important is it that I find out if I have gorlins?? By Janeyj |  6 Oct 2012 |  6 answers
  9. Turp
    Is there any financial help out there for people with Gorlins? By Turp |  15 Sep 2012 |  3 answers
  10. Turp
    Could Gorlins cause painful hemmroids or possiblly be some kind of cyst instead of hemmroids.Child has had them for over a year now. By Turp |  15 Sep 2012 |  1 answer

Poll

How well do you feel your condition was managed over the last year?

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